About Us

People with Sickle Cell and Rare Diseases have human dignity. The lives of people with Rare Diseases have value.

We are trustworthy. We are reliable, authentic, and loyal. We do what we say we will do. We have the courage to do the right thing. We welcome accountability and conduct our business with honesty and transparency. We will meet the highest ethical and professional standards in all of our organizational endeavors and, in doing so, we hold ourselves accountable to our mission and to the public.

 We are committed to a positive environment in which everyone may experience a sense of belonging and worth. We honor relationships and take responsibility for fostering trust, respect, and good will. People with SCD are part of and contribute to the fabric of society. Everyone benefits when people with SCD are present and participate 

People with SCD and Rare Diseases have differing support needs. Society must support people with SCD and Rare Diseases to achieve their full potential. Society should also help families who provide support for loved ones with SCD and Rare Diseases. 

Society must remove barriers and correct injustices that limit opportunities for people with SCD. Extra action is needed to help people with SCD and their families, who face other forms of bias or discrimination.

We choose to serve first, embracing our roles as servant leaders in our organization and our community. Service is a force that motivates every member of our organization. We are committed to serving those we lead as well as those we follow. In the spirit of service, we freely give of our time, energy, and resources.

We are committed to pursuing the highest possible standards at every level of the organization. We strive to become the benchmark through innovation and initiative. We are committed to putting forth our personal and professional best.

Human diversity is beautiful and powerful. We celebrate, honor, and seek to understand the differences in our identities and life experiences.

We work as a team, achieving more collectively than individually. We are a cohesive unit setting aside our personal agendas and working toward our shared mission. We are committed to creating synergy by encouraging each other and working collaboratively.