rARE fINANCIAL hEALTH gUIDE FOR PEOPLE LIVING WITH sICKLE CE

Early this year Dreamsickle Kids was one of the Global Genes Financial Advocacy In Rare grants which allowed us to create an eBook to provide information to patients with SCD as it pertains to the Nevada SCD Bill, AB254 passed in 2019, the Value Added Benefits include with Medicaid providers, SSI qualifications for those with SCD, and ABLE accounts. Our goal is to ensure patients in NV are aware of resources and legislation which could be of direct benefit and provide some ease to the financial burden that is associated with SCD. Download this guide to add to your advocacy toolkit!

Sickle Cell patients currently have one option for a chance of a cure to their debilitating disease, 100,000 people live with SCD in the US. Most are of African Descent. The numbers are clear, only 23% of African Americans are likely to find a match. That is due to the lack of diverse donors . We have partnered with Be The Match in effort to increase those numbers to give Sickle Cell Warriors a greater chance at a cure. When you join Be The Match , you join a network of people that have decided to save someone's life.