Early this year Dreamsickle Kids was one of the Global Genes Financial Advocacy In Rare grants which allowed us to create an eBook to provide information to patients with SCD as it pertains to the Nevada SCD Bill, AB254 passed in 2019, the Value Added Benefits include with Medicaid providers, SSI qualifications for those with SCD, and ABLE accounts. Our goal is to ensure patients in NV are aware of resources and legislation which could be of direct benefit and provide some ease to the financial burden that is associated with SCD. Download this guide to add to your advocacy toolkit!
If you are looking for additional information about COVID19, please visit CDC.GOV for local information on COVID19 you can also visit SNHD.ORG
Nevada's first comprehensive Sickle Cell clinic serving children and adults with SCD in the Valley.
2-1-1 is a special telephone number reserved in Canada and the United States to provide information and referrals to health, human and social service organizations. Dialing 2-1-1 in almost every part of the United States will connect you to human and social services for your area.
2-1-1 services include places to find emergency food, housing and emergency shelter locations, children’s services, support for seniors, older persons, and people with disabilities, and mental health and counseling services, among many others.
Help Those with Sickle Cell That are Dreaming of a Cure
Sickle Cell patients currently have one option for a chance of a cure to their debilitating disease, 100,000 people live with SCD in the US. Most are of African Descent. The numbers are clear, only 23% of African Americans are likely to find a match. That is due to the lack of diverse donors . We have partnered with Be The Match in effort to increase those numbers to give Sickle Cell Warriors a greater chance at a cure. When you join Be The Match , you join a network of people that have decided to save someone's life.
Dreamsickle Kids Foundation, Inc is a 501 ( C) 3 nonprofit registered in the state of nevada. tax id 82-4557748. Dreamsickle Kids Foundation, Inc provides many types of support not listed, please contact us via phone or email for more information on the available assistance we can provide to families impacted by Sickle Cell or Rare Diseases.
Permission to use the Dreamsickle Kids Foundation name or logo in any variation, is subject to the terms and conditions expressly agreed upon in writing with approval from the Dreamsickle Board of Directors. Unauthorized use is prohibited and subject to legal ramifications.
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Join Dreamsickle Kids & BCHWA for a healthy holiday event. Gifts and fun for everyone and tons of local community health resources. Registration opens soon. Stay Tuned!